Trigeminal Neuralgia: 26 years

So if you’re been reading this blog for awhile, you know that I have been battling trigeminal neuralgia (an excruciatingly painful inflammation of the trigeminal nerve, which supplies sensation to the face) for about four years. It went undiagnosed for almost three. The medication I take to control it stopped working around May, and my dose was increased. It did not help at all. So I’m pretty much back to constant pain again which frankly sucks.

Four years.

Very recently, I made a startling discovery.  I have been battling it for longer.

Twenty-six years.

Let me explain.

I had major jaw surgery to correct severe TMJ when I was fifteen—a nine-hour surgery where my oral/maxillofacial surgeon broke my jaws apart and realigned them, rearranged my face the way it’s supposed to be, and wired my jaws together for two months. As I’ve learned, surgeries like this—as well as routine dental work—can cause TN.

I had 28 pieces of hardware after the surgery. They took a “if it doesn’t hurt, don’t do anything” policy because taking them out would be another big surgery. They didn’t bother me, for the most part, for eleven years. Then, I started getting infections and rejections. So out they came. Oddly enough, most of the right side is still intact while the left is almost completely gone.

Throughout this entire ordeal, I keep asking myself (and anyone else who would listen) why it stayed dormant for over twenty years and then popped up. Now I know …

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