Trigeminal Neuralgia: 5-Month Progress Report

Thought I’d give you an update on how I’m doing. For the most part, I’m pain free, which is wonderful. Some days I still have severe pain though, usually if it’s raining, if I’m stressed out, or, surprisingly, if I laugh too hard (that really threw me for a loop, but I suppose it makes sense — the motions of the face while I’m laughing must irritate the trigeminal nerve). I still have a bit of breakthrough pain near my next dose, and lately, I’ve had breakthrough pain as early as five o’clock (my second dose is at nine o’clock in the evening). Sometimes it will hit me out of nowhere with no discernible cause, and those times have me scratching my head. TN is definitely still a mystery, and I think it will take some time to peel all the layers off this condition. BUT when I think of where I was around this time last year, in excruciating pain and hopeless, I am ecstatic. Most of the time, I’m okay, and I’ve been able to handle the breakthrough pain well enough. It’s not constant anymore. And, I have a diagnosis. I finally have a reason why my eye and face hurt so much. That’s invaluable to me. And to think that if I hadn’t done the research, had given up hope…I’d still be in pain and depressed and probably suicidal (did you know that TN was once called the “suicide disease”? Because people, like me, were in such horrific…

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Christmas…Then and Now

It’s funny, but when you’re a kid Christmas is like the best day of the year (well, besides your birthday). And it’s magic, and Santa comes, and it’s all wonderful. But as you get older, things change. But the changes aren’t always bad: 1) Cooking. If you’re spoiled like me, you’ve never had to make a full Christmas dinner. But over time, I’ve had to take on some of the cooking for my mom who’s getting older. One year very recently she was too ill to make a Thanksgiving dinner, leaving me to make a very bare-bones dinner for my hubby and I. Everyone who knows me knows I hate cooking with a passion. But cooking with my mom is entirely different. One, I learn things. Two, we spend time together. And that’s really important as I grow older — taking time to be with the people I love. You never know how much time you or any one else you love will get, so every minute is precious. And, it’s all about helping take the load off of her — she’s not twenty anymore, and honestly needs my help. So, being the good daughter I am, I freely give my help. (Someday, it’ll just be me, and I hope those days are in the far, far future). 2) Stress. This may seem like a negative, but it really isn’t. I tend to stress out because I simply care. I care to take the time to pick out good gifts for…

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