This is eerie, you guys. I posted my one-year update on June 21st of last year. And, like I said in that post, it was technically my eleven-month update, but one-year update sounded better. And kind of final. So this one is technically my one year, eleven month update. Close enough, right?
When I posted that glorious post, I had every reason to believe that while things may get bumpy here and there, I would remain pretty much pain free. I guess it was naive, and a lack of dealing in realism. I’ve always known that TN is a progressive condition and it gets worse over time. Most people end up having some sort of brain surgery done. Scary thing is, it’s not always successful. And that is scary in itself.
I guess I never wanted to truly believe that that would be me someday.
Today I have some crappy news.
My pain has returned to almost constant levels. I hit level 10 several times last week, and took four loopy pills (not all at once. One each day). I’ve been tracking everything since May 15th, in the hopes that I can figure out a pattern of some sort, and if my neurologist wants details. The problem with tracking is that you become so aware of the pain, more than ever.
Here’s a sample of one of my pain journal entries:
Eye pain level 5 at 2:14pm Duration: 2 hrs 45 mins
Left forehead pain level 4 at 4:55pm Duration: …
As I prepare for Ever Touched’s release and what comes after (hint: a lot!), I’m pondering using voice recognition software to write again.
(Some of Ever Touched was written using Dragon Naturally Speaking when I found myself with a severe tendonitis flare up and no time to take off.)
I’m no stranger to Dragon. I started using it back in 2003 (version 6) when I thought I had carpal tunnel syndrome. Ergonomics wasn’t much of a thing back then; I wrote until my wrists damn near fell off. Oops? And it worked well — after I got past the whole “talk to write” idea and got into a groove. My intention was to do it all the time, but between the bulky headset that gave me headaches and a longing to just type, I ended up quitting, only using it when absolutely necessary. Which is fine…if I didn’t want to get more books out there which means faster drafting. Fast drafting (say, more than 1,000 words a day) is impossible due to my wrists. I barely finished my amended Nano goal in 2015 (30k) because typing 1,000 words a day for 30 days was hurting me (it’s cumulative).
(For the curious: I didn’t have carpal tunnel, just severe tendonitis that could turn into carpal tunnel. It was a wake up call. And I’m up to Dragon version 13 now. Every version gets better. They claim now it is something like 96% accurate without training.)
I’ve despaired forever over this. And I …