Trigeminal Neuralgia: Two-Year Update

This is eerie, you guys. I posted my one-year update on June 21st of last year. And, like I said in that post, it was technically my eleven-month update, but one-year update sounded better. And kind of final. So this one is technically my one year, eleven month update. Close enough, right?

When I posted that glorious post, I had every reason to believe that while things may get bumpy here and there, I would remain pretty much pain free. I guess it was naive, and a lack of dealing in realism. I’ve always known that TN is a progressive condition and it gets worse over time. Most people end up having some sort of brain surgery done. Scary thing is, it’s not always successful. And that is scary in itself.

I guess I never wanted to truly believe that that would be me someday.

Today I have some crappy news.

My pain has returned to almost constant levels. I hit level 10 several times last week, and took four loopy pills (not all at once. One each day). I’ve been tracking everything since May 15th, in the hopes that I can figure out a pattern of some sort, and if my neurologist wants details. The problem with tracking is that you become so aware of the pain, more than ever.

Here’s a sample of one of my pain journal entries:

Eye pain level 5 at 2:14pm Duration: 2 hrs 45 mins
Left forehead pain level 4 at 4:55pm Duration: …

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