Trigeminal Neuralgia: 5-Month Progress Report

Thought I’d give you an update on how I’m doing. For the most part, I’m pain free, which is wonderful. Some days I still have severe pain though, usually if it’s raining, if I’m stressed out, or, surprisingly, if I laugh too hard (that really threw me for a loop, but I suppose it makes sense — the motions of the face while I’m laughing must irritate the trigeminal nerve). I still have a bit of breakthrough pain near my next dose, and lately, I’ve had breakthrough pain as early as five o’clock (my second dose is at nine o’clock in the evening). Sometimes it will hit me out of nowhere with no discernible cause, and those times have me scratching my head. TN is definitely still a mystery, and I think it will take some time to peel all the layers off this condition. BUT when I think of where I was around this time last year, in excruciating pain and hopeless, I am ecstatic. Most of the time, I’m okay, and I’ve been able to handle the breakthrough pain well enough. It’s not constant anymore. And, I have a diagnosis. I finally have a reason why my eye and face hurt so much. That’s invaluable to me. And to think that if I hadn’t done the research, had given up hope…I’d still be in pain and depressed and probably suicidal (did you know that TN was once called the “suicide disease”? Because people, like me, were in such horrific…

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